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    • Research into inherited retinal disease
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  • Inherited retinal disease
    • About inherited retinal disease
    • Types of inherited retinal diseases
    • Other retinal dystrophies
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We have a vision.
A world without inherited blindness.

There are no cures. There are very few treatments.
Help us change that.

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What we do

Research

Retina Australia funds and facilitates the top medical research into inherited retinal diseases (IRDs) through a competitive annual Research Grants Program.

  • Research we fund
  • Impact reports of past research grants
  • Strategy and governance of our Research Grants Program
  • Apply for a grant
Read more about Research

Information

We provide information about:

  • Inherited retinal disease (IRD)
  • Different types of inherited retinal diseases
  • Other retinal dystrophies – AMD and GA
  • Anatomy of the eye
  • Inheritance patterns
  • Genetic testing
  • Participating in clinical trials
  • An IRD Research Project and Clinical Trial Register
  • Latest updates on emerging treatments
  • From Lab to Life 1 – The Path to New Medicines – Treatment Discovery to Patient Access
  • From Lab to Life 2 – How patients can help advance treatment discovery and have their say in the medicine approval processes
  • Frequently asked questions
Read more about Information

Support

Retina Australia also offers support via:

  • Providing Guides for:
    • The newly diagnosed
    • Parents of children diagnosed with an inherited retinal disease
    • Friends of the newly diagnosed
    • Financial assistance supports
  • Community Billboard – activities and event calendar
  • Reference material in regard to:
    • Eye care professionals
    • Looking after your eyes
    • Vision loss aids and rehabilitation
  • Peer Support Groups
  • Phone support and referral guidance
Read more about Support

Inherited retinal diseases impact an estimated 19,000 Australians.

They are the leading cause of blindness in working age adults and the second leading cause of blindness in children.

Thanks to our generous donors, we have invested

over $6.5 million

in more than 140 projects

since 1989

Latest Retina Australia news

New Board Appointments

Retina Australia directors are thrilled to announce the recent appointment of Associate Professor Anai Gonzelez-Cordero and Dr Alexis (Ceecee) Britten-Jones to the Board. Anai and Ceecee have been long...

Read More about New Board Appointments

First treatment for geographic atrophy approved in Australia

Apellis' SYFOVRE® (pegcetacoplan) TGA Approved  Apellis Pharmaceuticals, Inc. announced today that Australia’s Therapeutic Goods Administration...

Read More about First treatment for geographic atrophy approved in Australia

2025 Research Grants awarded

Retina Australia is delighted to announce two new Research Grants awarded for 2025.  Both grant projects will be focusing on the discovery of potential new...

Read More about 2025 Research Grants awarded
VIEW ALL about Latest Retina Australia news

Latest blog posts

World Research Summary by Dr Catherine Civil

Hot Off The Press Check out below to see what new inherited retinal disease (IRD) therapies are in the pipeline. There...

Read More about World Research Summary by Dr Catherine Civil
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