Self help and support groups
Self help and support groups can assist you to deal with life’s challenges. You can join a group online or one which meets regularly. Groups provide a great way to encourage and support each other, access information and education, and share experiences with people who can really understand.
Get in touch with Retina Australia for further information on one of our peer support groups as mentioned above, or about a meetup group or events in your area. If one doesn’t exist, then perhaps you can think about starting one. Consider coming to one of Retina Australia’s congresses to meet other people with inherited retinal diseases and meet and hear Australian scientists who are researching inherited retinal diseases.