This Register aims to provide information about some of the research projects, programs and clinical trials in the area of inherited retinal disease that are currently being conducted.
Included are projects relating to people living with an inherited retinal disease, but some may also involve carriers, parents and guardians, carers, family members and health care professionals.
Below is a listing of some of the projects that are currently in progress.
This listing is for informational purposes only
Retina Australia does not review, or approve the safety and science, nor endorse any particular research project, program, clinical trial or organisation.
You can find out more about each project by clicking on the links provided in the table.
We advise that you seek advice from your health care professional.
Register of Research Projects and Clinical Trials into Inherited Retinal Disease
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The Victorian Evolution of Inherited Retinal Diseases Natural History Registry (VENTURE) Study
Disease: All inherited Retinal Diseases
Participants: Patients, Carriers
The VENTURE registry collects retrospective and prospective data from people living with an inherited retinal disease.
Participants can choose to be remotely registered or attend a baseline research visit for eye examinations and vision and lifestyle questionnaires.
Participants can choose to return for longitudinal visits and other research studies, with no obligation to do so at any time. They can also opt-in to be contacted should any relevant clinical trials become available and for a report to be sent back to the referring clinicians following VENTURE related research visits.
Recruiting participants in East Melbourne and Carlton.
Sponsor: Centre for Eye Research Australia and the University of Melbourne