Podcast: Dealing with inherited retinal disease
Talking Eyes with Lien Trinh Guest speaker: Professor Lauren Ayton Talking Eyes is an Australian podcast dedicated to exploring the latest...
World Research Summary by Dr Catherine Civil
Hot Off The Press Welcome back to you all and I hope you all had a delightful festive season. I have...
Professor Jean Bennett – Melbourne November 2024
It was great for Rosemary and I to meet up with Professor Jean Bennett...
New Research: Forty-year odyssey to Refsum disease diagnosis: impact of diagnostic delay on effective treatment
Often misdiagnosed as retinitis pigmentosa (RP), with the average...
World Geographic Atrophy Day 2024
For World Geographic Atrophy Day 2024 on 5th December, Retina Australia is raising awareness for this leading cause of vision loss in people over...
Are there IRD treatments available?
One IRD treatment in Australia In Australia, there is currently one regulatory-approved therapy for an IRD, a gene therapy called Luxturna® (voretigene neparvovec-rzyl, Novartis), for...
IRD Diagnosis and genetic testing
How do I know what type of IRD I have? Difficulty in diagnosis When first diagnosed with an IRD, the disease name can vary between doctors...
In Focus: Inherited retinal disease
What is an inherited retinal disease? An inherited retinal disease (IRD) is a condition caused by a genetic anomaly that leads to loss of vision...
Cell therapy, genetic research and a patient’s perspective
This is a summary of the webinar that was presented on Saturday 19th October...
New Research: Comparison of Long Cane and Electronic Travel Aids for Mobility
The research study, "Functional performance comparison of long cane...
World Research Summary by Dr Catherine Civil
Hot Off The Press More updates on the latest research: CRISPR-Cas13 and RNA We have just about got our heads around the...
World Research Summary by Dr Catherine Civil
Hot Off The Press More updates on the latest research: Gene therapy is improving vision in Bothnia Dystrophy Bothnia dystrophy is a...
World Sight Day 2024
Love Your Child's Eyes Retina Australia is joining Vision 2020 Australia and the International Agency for the Prevention of Blindness (IAPB) again this year in raising awareness for eye health...
Top 10 Research Priorities for Inherited Retinal Disease
We are thrilled to share the Top 10 Research Priorities for Inherited Retinal Disease,...
World Retina Day 2024
For World Retina Day on 29th September 2024, Retina Australia is raising awareness about inherited retinal disease, and also the focus of the top 10 research priorities identified by...
World Research Summary by Dr Catherine Civil
Hot Off The Press More updates on the latest research: Up to a 41% improvement in AMD over 5 years. And...
Geographic Atrophy: We Can’t Wait and See
The Case for Action Geographic Atrophy: We Can't Wait and See is a report that highlights the urgent need to...
The Blind Sea
Launched in cinemas nationally on 15 August 2024, The Blind Sea is an inspiring film documentary about Matt Formston, Paralympian and 4x World Champion blind surfer. Matt was diagnosed with...
World Research Summary by Dr Catherine Civil
Hot Off The Press A few snippets for you this month to keep you excited for the future: Artificial intelligence can...
World Research Summary by Dr Catherine Civil
Hot Off The Press IRD research is making its way out of the laboratory and into clinical trials. ‘Finally!’ I hear...