IRD Research Project and Clinical Trial Register

The (inherited retinal disease) IRD Research Project and Clinical Trial Register aims to provide information about research projects and clinical trials in the area of inherited retinal disease.

The difference between a research project and clinical trial is that a clinical trial involves at least one human health intervention. Common examples of research projects are natural history studies (designed to learn about how vision and eye health changes over time in a particular type of IRD), or surveys and questionnaire studies.

Projects and trials may relate to people living with an inherited retinal disease, but some may also involve carriers, parents and guardians, carers, family members and health care professionals. 

This listing is for informational purposes only

• Retina Australia does not review, or approve the safety and science, nor endorse any particular research project, program, clinical trial or organisation.
• You can find out more about each project by clicking on the links provided in the table.
• You can read about clinical trials and what is involved in participation here, however we strongly advise that you seek advice from your health care professional before participation.