New Research: The burden of X-linked retinitis pigmentosa (XLRP) on patient experience and patient-reported outcomes
X-linked retinitis pigmentosa (XLRP) is considered one of the...
New Research: The Impacts of Caregiving for Patients with X-Linked RP
X-linked retinitis pigmentosa (XLRP) is considered one of the...
New Research: Dismantling barriers to research and clinical care for individuals with a vision impairment
People with vision impairment face limited access to research...
X-linked retinitis pigmentosa RPGR gene therapy study update
The LUMEOS study was sponsored by Janssen Research & Development, LLC (a division of...
World Research Summary by Dr Catherine Civil
Hot Off The Press Check out below to see what new inherited retinal disease (IRD) therapies are in the pipeline! Base...
Podcast: Mental Health and Rare Eye Diseases
Perspectives Podcast by Retina International Guest speaker: Matt Bolz-Johnson, a mental health lead at EURORDIS-Rare Diseases Europe Retina International's Perspectives Podcasts...
New Research: Navigating a hidden disability – Lived experiences and challenges of adults with early stage inherited retinal diseases
Inherited retinal diseases (IRDs) are genetic conditions that typically...
Perspectives of stem cell therapies for retinal conditions
Retina Australia has partnered with researchers at the University of New South Wales to...
AAV-Based Gene Therapy for Retinal Diseases: A 2025 update
Retina Australia 2025 grant awardee, Dr Jiang-Hui (Sloan) Wang, PhD (Research Fellow), from the...
Vision improvements from Australia’s “second generation” bionic eye
Image is courtesy of Anna Carlile Summary Advancements in retinal prosthesis...
Podcast: The Australian Bionic Eye Project
Talking Eyes with Lien Trinh Guest speaker: Associate Professor Penelope Allen Talking Eyes is an Australian podcast dedicated to exploring the...
5 Years of Luxturna
5 years of Luxturna - The first gene therapy for an IRD ERN-EYE hosted a webinar in late January 2025 to mark five years since the first gene therapy for...
Podcast: Fixing the Code for Inherited Retinal Diseases
Talking Eyes with Lien Trinh Guest speaker: Dr Tom Edwards In this Talking Retina episode, Fixing...
First treatment for geographic atrophy approved in Australia
Apellis' SYFOVRE® (pegcetacoplan) TGA Approved Apellis Pharmaceuticals, Inc. announced today that Australia’s Therapeutic Goods Administration...
Podcast: Dealing with inherited retinal disease
Talking Eyes with Lien Trinh Guest speaker: Professor Lauren Ayton Talking Eyes is an Australian podcast dedicated to exploring the latest...
World Research Summary by Dr Catherine Civil
Hot Off The Press Welcome back to you all and I hope you all had a delightful festive season. I have...
Professor Jean Bennett – Melbourne November 2024
It was great for Rosemary and I to meet up with Professor Jean Bennett...
New Research: Forty-year odyssey to Refsum disease diagnosis: impact of diagnostic delay on effective treatment
Often misdiagnosed as retinitis pigmentosa (RP), with the average...
World Geographic Atrophy Day 2024
For World Geographic Atrophy Day 2024 on 5th December, Retina Australia is raising awareness for this leading cause of vision loss in people over...
Are there IRD treatments available?
One IRD treatment in Australia In Australia, there is currently one regulatory-approved therapy for an IRD, a gene therapy called Luxturna® (voretigene neparvovec-rzyl, Novartis), for...