11 November, 2023
The Victorian Evolution of Inherited Retinal Diseases Natural History Registry (VENTURE) Study is a collaboration between the Centre for Eye Research Australia and the University of Melbourne led by Associate Professor Lauren Ayton and Dr Tom Edwards.
The study aims to collect retrospective and prospective data from people with inherited retinal disease (IRD) and female carriers of X-linked IRD.
The purpose of the registry is to enable:
- recruitment for investigator-initiated research studies, including longitudinal natural history studies and genotype/phenotype studies, and
- to identify people who may be eligible for upcoming industry-sponsored clinical trials.