Understanding your child's condition
If you’ve just learned that your child is, or will become, visually impaired, this is likely a difficult time for you and your family. You may be unsure how to tell family members and friends about your child’s vision impairment. You may be wondering how your child’s vision impairment is going to impact your child’s future. Diagnosis of a child can be an overwhelming experience.
IRDs are the leading cause of blindness in working age adults and although they are genetic conditions, you may be the only person in your family with the condition depending on the inheritance pattern. There are around 300 different genes that have been identified to cause IRDs and the symptoms can present very differently in each person.